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Old Wed Nov 8, 2006, 04:05 PM
Markitect Markitect is offline
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Join Date: Sep 2006
Location: Bloomington, Indiana
Posts: 5
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Dear Gina,

Thank you for your thoughtful email. You have no idea how badly I need the encouragement! Your timing is perfect. I am so happy to hear that Shane is doing well. Just think, he will probably remember
only bits and pieces of his experience with AA, which is terrific.
Hope he continues to be healthy and grow.

I think you're right about my body getting used to feeling miserable! I guess I have the wonderful feeling of not being tired to look forward to. I can't remember what I used to feel like, but I am acutely aware of my limitations and would be overjoyed to have them removed.

I'm glad that you have a supportive family. I do too, which is why I am still here fighting this illness. I am in the process of figuring out when to quit working. I have a demanding job that I enjoy, so quitting is difficult for me. Not to mention paying those bills! I will be meeting a transplant specialist on the 15th, November and should have a better idea of which direction I will go after that. I will post on the forum when I know more.

Again, thank you for your kind words. Best wishes to you and your family.

Ciao,

Mark
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Mark, patient with SAA, diagnosed 2004, treated with r-ATG/cyclosporine in January, 2006 - no response, treated with Campath in July, 2006 - waiting for response.
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