Hi Mark and all,
I agree this and other forums are very helpful for us patients, It's been some time since anyone posted to this thread but thought I'd answer. I was dxed with AA in 1998 but had mildly low WBCs for years previously. I also have PNH and so far have been doing pretty well. If you are still searching out BMT protocols, my friend tamir had a successful mini at NIH. he would be. He would be happy to discuss his experience and what he learned with you. he is on the
www.pnhdisease.org site and a BMT forum-it's name escapes me at the moment.
suz