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Hi Mark,
Welcome to the forum and thanks for making the first AA post! It's interesting that you had that stretch of time between the "low platelets" and the diagnosis of severe AA. I would imagine that if a bone marrow biopsy had been done in 1991, the diagnosis would have been AA then.
I was diagnosed with SAA in August 1980. You'll be able to read all the gorey details of my story soon right here at Marrowforums when my profile page goes up - Ruth has been kind enough to do some editing and I'm trying to get some photos together to accompany it.
I've had 5 courses of ATG over 26 years and been lucky to respond each time but.....always relapse. I'd be happy to answer any questions you have.
I'm glad to hear you've been able to live your life so fully. Keep up the good work!
best wishes,
Andrea
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Andrea, diagnosed SAA 1980; treated with ATG 5X, diagnosed Hepatitis C (from transfusion) 1980, diagnosed PNH (small clone) approx 1998
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