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Hi Mark,
I am transfusion dependent only during relapses, usually just the few months before treatment. Last time around, however (2002) I was having an allergic reaction to about 3 out of 5 transfusions, and so was not receiving the desired benefit. This is one of the long term side effects - I am the Antibody Queen!
best,
Drea (that's what my friends call me)
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Andrea, diagnosed SAA 1980; treated with ATG 5X, diagnosed Hepatitis C (from transfusion) 1980, diagnosed PNH (small clone) approx 1998
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