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Old Sun Mar 18, 2007, 11:46 PM
julia69 julia69 is offline
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Join Date: Mar 2007
Posts: 12
Daclizamaub

Quote:
Originally Posted by Wendy Beltrami View Post
Hi Julia-
Amen to that! Grant is now trying Danazol, 200mg bid, along with 125 cyclosporine. It's been about 4 1/2 weeks now and I don't think there is much improvement. I think daclizumab is on the list as one thing we will try next.

I was looking at some of the labs that were done when we went for the consult at Cleveland Clinic prior to starting the Danazol. One was for erythropoietin level and another was haptoglobin. I don't recall him being tested for these two things in the past.

Can anyone give me any interpretive info on understanding this lab result?

Epo value was 855

Haptoglobin level was <20

Hematocrit on this day was 32.4

Wendy B. mom to Grant
I know you said it's on your list, I really loved the idea of a kindler gentler way but I swear it was a placibo we got, nothing changed, I mean I could how one cbc next to a before and nothing. We went severe a few month after trial.
Best of luck,
Julia and Gabe
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