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Hi Kristina,
There are alot more educated people than me and I'm sure they will give you more information but I thought I would give you the limited insight I have.
It took 6 months and going to the National Institutes of Health in Bethesda, Md. for my husband to get a firm diagnosis - and our oncologist/hematologist is an MDS expert. He started needing transfusions months before he was even diagnosed. Our hema. said that sometimes MDS and Aplastic Anemia (this is the correct spelling) can overlap. Also it can be difficult to tell the difference between the two therefore difficult to diagnose.
If it were me or my husband I would go to another hematologist who specializes in MDS. Maybe some on the forums can give you some suggestions for doctors in your area.
I wish you well.
God Bless,
Sally
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