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Old Wed Dec 18, 2013, 03:22 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Quote:
Originally Posted by Heather8773 View Post
Thx y'all is it normal to go up and down in counts? My husbands WBCs seem to keep going back to 1.? And then he gets neupagen. His plts dipped back 15 pts
Hi Heather, my team told me it can take a year for counts to normalize.

Neupogen shots can redirect the energy from making platelet and/or red cells, to making white cells. It's a delicate balance and there are different theories on giving neopogen shots post transplant, depending on length of time post transplant, levels of neutrophils... I definitely experienced this relationship when I regularly required transfusions and neupogen prior to my transplant.

A few questions:

Is he still under the care of his transplant team?
How long post transplant did he begin receiving neupogen?
How low are they letting his neutrophils go before they give him neupogen?
How high have all his counts risen since his transplant?

Best,
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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