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Thank y'all so much for your replies! They are all insiteful!
Yes as of two weeks ago he started to go once a week bc he's been doing pretty good.
He has had 6 shots. 2 while in the hospital around day 15..4 since being released 10/30/13
Even when he was at 1.9 on his WBCs last week his nutriphils were in the upper end of normal. I'll have to ask to see why they give it sometimes and why not.
Well his WBCs have got to almost 6 but I don't trust that bc it was after neupagen. They keep trickling back down.
His HGB seems to be standing still the last couple weeks at 12.8
His plts went from 169 to 150 (earlier I said 15 pts but I guess it's really 19 pts back)
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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