Heather,
Doug is off Prograf altogether and has been for some time now. His kidneys were taking such a hit that the doctor didn't think he could keep him on it. He is now on Cellcept (sp?) and that dosage has been increased.
He did have GVHD of the skin and has been on steroids as well. But the doctor thinks that this combination is working well for him.
They have to adjust and adjust and then readjust the meds. It is such a delicate balance, as many have said.
Take a breath, hang in there, and KEEP asking questions. They will get it right. I am sure that your husband is getting great care and has a lot of expert opinions in there. But for your sanity, get your questions answered!
Good luck and God bless!
Deb
P.S. Oh yeah, throw Merry Christmas in as well
