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Old Fri Oct 10, 2014, 01:39 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Karen,

I am really sorry that you have to go through all of this and understand your frustration with the continual stream of specialist appointments.

I agree with KMac that you must make use of this watch-and-wait period to consult with other specialists in bone marrow failure disease. How are your RBCs and Platelets doing?

If you do have AA, you probably aren't a candidate for immune suppression because it can encourage tumor growth. However, it may be possible that something like cytoxan could work for both your breast cancer and AA. I am not in the medical field and do not have experience with breast cancer personally, but am just trying to think of some other options that I've heard others talk about. Although it will be hard, it would be wise to consult with another specialist like Dr. Marsh to confirm that watch-and-wait is the right approach and to come up with a different strategy if it isn't.

Hope you find some answers!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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