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Old Wed Jul 21, 2010, 09:46 PM
Susan L Susan L is offline
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Join Date: Jun 2010
Location: Ga
Posts: 245
ATG

Hi - I had ATG treatment at the NIH 7 yrs ago. It was like you are experiencing, bad flu like symptoms. I had what is called serum sickness after like 2 weeks. It was horrible (sorry) my legs swelled, and turned purple and couldn't walk on them. I also took Cyclosporin and Prednisone, benedryl, lasix and pain pills. Are you being followed by someone who is familiar with the treatment at home? Blood tests were done weekly. The treatment is hard but works. I wish you the best and let me know how you do.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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