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sbk007,
I did tolerate Dacogen well, mostly constipation from the nausea injections, and slight nausea, which was compounded by the constipation... I was very tired / sluggish from the 1st round, but I have recovered quickly...
I am receiving chemo at NYU-CC, as they diagnosed my MDS (quickly), and I can NOT say enough about the staff, my Dr., and the hospital as a whole...
As for my BMT, my BM Transplant specialist is at Memorial Sloan Kettering (MSK-CC), so as you can see I am in good hands...
My Dr. at MSK-CC is actually VERY concerned about my IPSS score, and that is why I'm doing these rounds of chemo even though my BMB came back at 3% blasts, the thinking is that the better my blasts are prior to BMT, the less it should be a factor on my recovery (less chance of a relapse)...
God Bless...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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