[evansmom]

Hi Sally,

So sorry to hear of all your hardships which I'm sure would have been less had your transplant team not dropped the ball on you.

I think Neil is right, you still are 100% donor so I am hopeful as well that once your CMV number settled down to near zero, you will see your counts recover. My son had high liver enzymes throughout transplant and for almost two years beyond (ast/alt ranging anywhere from 90's to 200's, NEVER in normal range) and the docs were initially worried about liver GVH, but I never believed it was that as he never had a trace of even minor GVH of his skin, nevermind something more serious.

Turns out, and my research confirmed this for me, that any time one's viral load is high, it is common to see a mild to moderate rise in liver enzymes. I now believe Evan was struggling with a high viral load which climaxed with a terrible flu followed immediately by a bad case of shingles at 17 months post BMT. He went on oral acyclovir for 5 days and, to the best of my memory, his liver enzymes were never outside the normal range again.

Hang in there, things wil turn around. Be sure to continue being a good advocate for yourself, speak up and ask questions when things don't seem right. Make sure, with the meds you're on, that they continue to monitor your kidney function.

Best wishes,