Linda,
Dr. Brodsky's office should have referred you to the pediatric doc at Hopkins that handles the AA cases for kids. I think it's Dr. Chen but not sure. Also, I know that Dr. Brodsky does get involved in these cases, but not as the primary doctor. Dr. Brodsky will consult with any doctor regarding the treatments so maybe your local hemo would call him.
If you go to Aplastic Central site and select the patient forum at the top, you can search on for a post by Mike, who's daughter was treated at Hopkins. You can also read the many post by others with children who have AA.
The link is: http://www.aplasticcentral.com/
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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