Thread: Thank you
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Old Sun Aug 26, 2007, 07:12 PM
breitenr breitenr is offline
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Join Date: Aug 2007
Posts: 2
Red face Thank you

I want to take a moment and thank all of you who made me feel so welcome at the Las Vegas meeting earlier this month. Some of you may remember me, my name is Rick and I live just outside of Orlando. I do not have any family members diagnosed with PNH but was at the conference to learn more about this condition. I don't believe I have ever met a group of people more knowledgable about their disease, more willing to share their stories or more deserving of a breakthrough treatment - if not a cure! I especially want to say hello to Dan (and family), Jenny and Mary. There were many others I met (like the nice couple from Orlando and the patient and her friend from Northern California) but unfortunately their names escape me. Although the original reason for my visit did not work out, I will continue to follow your journeys on this site and wish each of you much strength, good health and all the best life has to offer. Fondly, Rick
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