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Old Tue Oct 24, 2017, 07:50 PM
Callie Callie is offline
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Join Date: Jan 2014
Location: Fayetteville, NC
Posts: 25
For my dad (Bailie), the choice was easy - he never doubted needing to go to transplant. His disease (at diagnosis) was moving fast. Fortunately Vidaza got him into the best place possible for transplant while they searched for a donor. We (his family), like you, really didn't want him to go to transplant right then. He was doing great, enjoying life, feeling good. I really wanted as much of that for him as possible. But, while everyone is different, and each transplant (including gvhd) outcome is different, it's probably a good thing he didn't listen to us. If the plan is transplant, it is very important to do it at the optimal time healthwise. If he'd not gone through with the transplant, there is almost no doubt he wouldn't have lived as long as he did. He did remarkably well at transplant because of the shape he was in. But it was amazing the difference 3 years later when he had to go through induction chemo (treatment wasn't all that different) - he just didn't have the strength, both mentally and physically, that time around.

We all wish your dad the very, very best. Please make sure to ask as many questions as needed!!
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Daughter of Bailie (diagnosed RAEB-2 11/13; transplant 08/14; relapse with Ph+ AML 04/15; remission until 04/17; DLI 06/17; passed away 07/11/17 at Day+1059)...the best dad a daughter could have...
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