View Single Post
  #6  
Old Fri Sep 20, 2013, 01:15 AM
Heather8773 Heather8773 is offline
Member
 
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Susan thank you. Yes he had 3 potential matches (blessed) and at the time we asked she said she would have to double chk.

Steve no it is a full on transplant. total body radiation and chemo. They are waiting until he zeros out (about 7 days) then they will transplant. They were wanting the donor to give bmt (marrow) not sct but haven't told us which the donor agreed to. Unfortunately I wasn't at the appointment where they talked about risks of over seas donor but from what my mother in law remembers it is that in Eroupe there was a time period that some infections were present. Maybe Neil knows?
Vicki so good to hear from you I have been thinking about u a lot! Well same appointment I missed they talked about flying in the donor cells. I thought ins payed to bring the donor over!? That's what I was told when I joined the be the match registry to be a donor. So idk why the cells are being flown over and still wondering can they really not need to be frozen?
Vicki how are you doing now?
Praying for y'all
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
Reply With Quote