Thread: Transplant
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Old Sat Oct 26, 2013, 05:58 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Hi Kim, my understanding is transfusion dependence varies for each patient.

I had a non-myeloablative unrelated donor transplant end of January 2013, & was platelet transfusion free by week 2 (after needing them every 2-5 days previously) with normal platelets by week 3 or 4, and red blood cell dependent by 3 months, but was told this can take 1 year. Though I'm now almost 9 months post & have been transfusion free since end April, my hematocrit finally reached normal (36 for women) end Sept at month 8. my hematocrit was at 35 for 4 months so I was thrilled to finally reach normal. The only remaining count we're still waiting to become normal is my IG-G (immunoglobulin G). I've still needed an IG-G infusion every 2 months, though my team has told me this can take a bit more than 1 year post to reach normal, they typically stop IG-G infusions at 10 months to encourage patients systems to produce it without assistance.
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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