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I just noticed that this thread was titled Clinical Trials. Mike was part of a clinical trial. He was asked to take Vorinostat for 100 days. He took it prior to transplant for 30 days, I believe, and the remaining days post transplant. It was a study to see if this drug has an effect on GVHD. I really doubt if we will ever know the outcome unless this drug becomes part of the transplant protocol. Mike has had very little GVHD (mild) so perhaps it helped....especially when I read how severe some patients have it.
Mary
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good 
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