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Old Thu Oct 11, 2012, 11:19 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
You have a complicated set of symptoms, but I will give you my two cents.

Some of your symptoms show it could be pure red cell aplasia. It can be caused by parvo virus. The reticulocyte count is low resulting in low red cells and hemoglobin counts.

The clotting is not one of the symptoms of PRCA, but it is a symptom of PNH. Many of these bone marrow illnesses overlap. I'm not sure how the B cells fit in.

I have PRCA. The IVIG worked for me too, but it only lasted for three weeks or so before I needed another.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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