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Old Wed Dec 16, 2015, 09:27 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi - Thanks for posting your update - great news about the November biopsy!!

Bumpy road indeed - hopefully you're near the end of the rough patches and it will be autobahn the rest of the way - I admire your great spirit and perseverance.

I have a friend who had a hip replacement and is doing great - enabled him to be much more physically active, as he had been before he developed hip problems - the surgery really changed his life - so hopefully that will help you too.

How's the GVHD now - has it improved/improving?

There is some talk about giving me a maintenance round(s) of a low dose of Vidaza after about six months from my transplant - not sure for how long - but perhaps your Vidaza treatment served the same purpose - of knocking out any residual disease that tried to resurface.

All the best for a great Christmas and a very healthy 2016.
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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