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Hi Dan, thanks for the update. I am close to 4 yrs post trans for PNH. I was wondering if your avascular necrosis is related to your MDS and treatment, or is it unrelated. No relapse or serious issues for me post trans, only some photo treatments and meds for GVHD. A long, lengthy, and very involved process that I would do all over again. I was sick and tired of being sick and tired!!
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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