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Old Mon Nov 26, 2007, 09:58 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Hi Kelly,

My husband went to Hopkins for SAA treatment with Dr. Brodsky. Hopkins is a top notch center. I have heard good things about Dr. Gore also.

We too are in No. Va. John got all his transfusions, post treatment, at INOVA Fairfax. The staff there was very good also.

Regarding your white count.....John did really well with low white count for many years. You just have to be careful. Make sure to support your digestive system with good bacteria from plain yogurt or a supplement.

I think you need to explore all your options and since you are so close to NIH, there's no harm in seeing them also.

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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