Thread: MDS Low Risk
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  #14  
Old Tue Oct 10, 2017, 11:00 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Ian,

You may want to start a new thread for yourself, as I think your post may be getting lost in this thread, or you would probably see more responses from this forum

You should ask for all of your blood test results and your BMB results including flow cytometry and cytogenetics.

You want to ask your hematologist what type of MDS you have and how this diagnosis was determined.

Typically, for MDS, you must have significant dysplasia (in over 10% of your cells) or cytogenetic abnormalities and/or elevated blasts. The marrow is typically hypercellular with MDS, although it can be hypocellular. Look for the cellularity on your BMB or ask your doctor. If your marrow is hypocellular, they will need to rule out Aplastic Anemia.

Other conditions can mimic MDS, so it is important to feel confident in your doctor's diagnosis.

Have they done extensive testing for other things like B12, heavy metals, etc?

Are your counts stable since diagnosis?

Hope things go well tomorrow!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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