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Old Sat Dec 6, 2014, 05:35 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Thanks for the responses - I think at this point supportive care would involve frequent transfusions - which doesn't seem like a good option. The hope is Vidaza would eliminate the need for transfusions - but not sure how realistic that is. My marrow is relatively OK - no blasts or mutations - and we had been hoping to watch and wait for longer...
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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