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Thanks again for your responses - Bailie - I happy you are doing so well after the SCT - definitely inspiring. We did try Aranesp but without much luck. So Vidaza it is for now. I suspect the endgame will be a SCT but we're hoping to get as much time as possible feeling reasonably good before then - but at this point power walking four miles after an SCT sounds pretty good. Had first shot of Vidaza this morning - so far feel OK. Hemoglobin was 7.5 for we're on for another transfusion tomorrow as well....
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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