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Old Thu Apr 26, 2012, 04:45 PM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Neel,
I am very sorry about your Dad no matter what the cause. I'm sure you are very concerned. One of the many things that is so wicked about these diseases is what may help one may hurt another.
I wish you and your Dad the best.

And to correct one of my previous statements...
Quote:
Originally Posted by Sally C View Post
As of yesterday his platelet count was 116,000. They are now going to start cutting back on the Promacta - 25mg. every 2 weeks - until he gets below 100,000. If I'm not mistaken this is so there won't be the danger of causing blasts.
I asked NIH why they don't want his platelets over 100,000. They do this out of concern for clots. The MDS patients have the same protocol as ITP patients - some whose platelets went over 200,000 - so they set the limit at 100,000.
Sorry for the misinformation.
Sally
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