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Broader Perspective of Pediatric Care
Hi AZDreamer,
I believe most of us who are caregivers to children with AA would emphatise and understand how you feel and what you are going through.
Perhaps it is always good for parents to have a broader perspective of care for a child with AA, especially after a BMT or IST, because, while getting a child to drink more often is very necessary to flush the kidneys, there is a need to take a much broader outlook... which is FULL or COMPLETE nutrition needs for the child with AA especially after a BMT or IST. This would involve muscositis care, GVHD identification and care, nutritional needs eg food , diet guidelines.
In this respect, there is a good report by Patricia Sheena from the University of Illinios at Chicago, Nutrition Department which will provide guidelines on the above.
You can either purchase a reprint which is found in "Nutrition Issues In Gastroenterology Series #26", or if you care to leave your actual name and email address, I'll be most happy to point you to the location to download a free copy, if you feel this document is of interest to you.
Hope this helps.
Regards,
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Peter Lim, Dad to Stan, age 17 at time of dx Feb 2002VSAA; tx. ATG, cyclosporine, predisone; alternative herbal supplm & shark liver oil, off all meds 5/2002 normal blood counts. Only on shark liver oil.
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