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That is exactly my story. Undiagnosed MDS, went to AML, got chemo, went into remission, and ended up with MDS again. Spent the last 2 1/2 years battling and now am tranfusion dependent on blood and platelets.
Just got home from a week in the hospital with a bad bout of diverticulitis.
Have had numerous unspecific fevers, hospital stays, GI issues, Pnuemonia.
Diagnosed at 52 1/2; hoping to celebrate 55 on May 15th!
Live the best you can while you can and don't worry about the future. Everybody's experience varies so much. This disease is a roller coaster ride and you are best off to just go with the flow when possible. Live those travel dreams while you are not tied to a hospital...enjoy every moment!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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