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Old Wed Jul 24, 2013, 04:07 PM
marmab marmab is offline
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Join Date: Jul 2011
Location: Massachusetts
Posts: 67
headaches

I have heard of beta blockers being used to prevent migraines. Might be worth a try. I was given various migraine meds for my CsA headaches, which did work for mild headaches, but really the only drugs that worked for me for severe headaches were oxycodone (OxyContin) and hydromorphone (Dilaudid) together, or IV Dilaudid alone (Dilaudid is more effective given intravenously than orally). My doctors tried to keep my CsA trough level at the low end of the therapeutic range, but I had frequent headaches nonetheless until the CsA was discontinued.

Good luck. I hope the headaches taper off on their own. These drugs are no fun.
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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