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Heather,
thanks for the outreach - life at home has been good. I am working my way toward something that vaguely resembles normal, of course it is a new normal. Had my second outpatient visit today, my reds and platelets took a little break over the weekend, but whites and neutrophils continued to climb. I am now at day +26, which is amazing how quickly that happened.
I am scheduled for my 30 day bmb somewhere in the next few days. Docs think that i may have a little bit of skin gvhd starting to crop up, but it hasn't really advanced in the last 5 days, so it is a watch and wait, which is fine - i don't have pain or itch - unless in a warmer shower.
I have been able to walk and do small amounts of exercise - i usually go just short of breaking a sweat, which also seems to help with everything.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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