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Old Mon Mar 24, 2014, 09:37 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
bailie,

I only walk until i am starting to feel tired, not past that point, so it may take me 3 or 4 tries to hit my target for the day, but it does two things 1) wipes out boredom and 2) keeps me active enough that PT did not see fit to give me any one on one sessions. I also found that when i was in the greatest discomfort, walking eased the discomfort, no matter what the malady.

My schedule was flexible - there were mornings where I just couldn't sleep and would walk at 6 in the morning, then come in and take a nap, other times where I would walk at 10 or 11, and then take my last laps at 7 or 8pm. My trick as a rule was to order breakfast, lunch or dinner, then walk until they arrived with the food, or as long as I could handle - that was the closest to a schedule that I had.

Now that I am home, I am following the same rules. When I have the energy, i walk and walk until just short of being tired, then go back again and again until I reach my goal.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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