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Bailie,
I currently go in for appointments to the outpatient clinic every monday, wednesday, and friday and will continue that pattern until they think i can go to two days per week, which may be in just a few weeks depending on progress.
Heather, Plan A is watch and wait, Plan B is add another drug like sirolimus or MMF, or if absolutely necessary prednisone, and they also have photopheresis available as an option. And of course, creams to deal with any skin gvhd issues.
they really try to take as much of the less is more philosophy barring clinical evidence against it.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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