|
Hi Jules,
If you decide to come back to BrisVegas, am I right in thinking you'd go to the RBWH? My doctor works there as well as the MPH, Redcliffe and Wesley.
When I was discussing my reluctance to have a transplant with him today, I mentioned that mucositis sounded absolutely hideous. He told me that they give you a PCA with Ketamine in it and that it's known for knocking you out so that you can be in La La Land for most of the worst bits. At least that's reassuring. I've never had a narcotic, I refused analgesia even after I had 2 bone grafts on my spine 30 years ago. I'm a lot more sensible now, bring on the drugs if they make you more comfortable, that's my new philosophy.
I wish you well in whatever you decide to do and wherever you decide to go.
Good luck.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
|