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Old Wed May 19, 2010, 03:13 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Jules,

I heard through the Leukaemia Foundation Forum that Melbourne had some of the best BMT/MDS doctors as well. I have heard of Peter Mac on more than one occasion. I think you would be making a good decision if you have your transplant in Melbourne.

Part of the reason I'm putting my transplant off is because of my lack of support as well. I have very little family, just a sick brother and elderly parents. My small circle of friends would not be able to help as they all work full time and have their own families and own problems to deal with.

I'm happy for you that you have a faith in God to keep you warm. I am an atheist and don't have that comfort. I can't force myself to believe in God, if you don't believe, then, you don't believe. I sometimes get a little jealous of the comfort believing in God must provide. I think that it is a wonderful thing to have faith, no matter which religion you follow.

Keep well.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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