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Hi,
You are still taking Cyclosporine, right? Perhaps you are on too low a dose. Although ATG may have worn off, Cyclosporine should be taking over the fight, although it may take about 3 months to build in your system. Does your doctor do Cyclosporine trough measurements? Also, are you taking a "modified" version of Cyclosporine (like Neoral or Gengraf)?
Have you been tested for genetic forms of the disease like Fanconi Anemia?
Also, have they started looking for a bone marrow match, as you are so young?
One final thing that my doctor encouraged me to do was to take a hard look at my diet. Look at things you may be consuming that others aren't that may be contaminated and triggering the disease. For example, my doctor discouraged drinking any tea, as this is occasionally linked to AA. Some chinese herbs and even honey may also be triggers.
Hopefully, things will turn around for you soon!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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