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Things are getting worse.. According to my last lab report; WBC:0.5 ANC:0.1 . I was taking 250mg Sandimmun neoral and 16mg prednisone daily, and my cyclosporine level in my blood was 211 a week before.My doc decided to increase 250mg sandimmun to 300mg, 16mg prednisone to 32mg. I hope it work soon. I haven’t been tested for genetic forms. Does the IST treatment change if it is Fanconi Anemia?
In my family nobody is perfect match, so they are starting lookin from world marrow bank.
Im very careful about the things I eat and drink. My diet basicly consists of meat, fish, egg, milk , vegetables, no row food. I don’t eat fruits even it is washed throughly, instead my mom make them wait in vinegar and boil, making them compote. And also always washing my hands, wearing mask even in home when I was out of my room. I mean there is nothing wrong that can make difference.
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