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Old Tue May 27, 2014, 08:32 AM
jmajjb jmajjb is offline
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Join Date: May 2014
Location: Amery WI
Posts: 38
Exclamation New member- very scared!

Hello,
I am 49 mother of 2 young boys. I have been working on getting a diagnosis since March. Now it looks like I have Refractory anemia with ringed sideroblasts. Does anyone else on this forum have this diagnosis? Is bone marrow transplant an option?
My numbers have been steady since March.
Rbcs. 2.9
Hgb 10.9
Platelets 90,000
HCT 30.3
WBCs 5.2
I have tried 2 weeks on pyridoxine with no change.
What does this mean for me?
I live in Wisconsin. Have a second opinion at Mayo clinic in Rochester next week. Does anyone know where is the best place to go for this condition?
I am very scared... I don't have many symptoms. My tongue was inflamed and lost the sense of taste but seems to be coming back.
I don't have fatigue or headaches. What should I expect?
Any advice would be so appreciated!
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