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Old Sun Oct 27, 2019, 04:45 PM
David T David T is offline
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Join Date: Oct 2018
Location: London, England
Posts: 16
Still Fighting

Thanks for the update on Ed. I am glad to hear that he is making progress, despite the inevitable setbacks.

I am doing well at the moment. The chemo was discontinued after three cycles because my biopsy showed that I was back in remission and my chimerism was up to 99%.

Since them my blood counts have been erratic, but they are gradually improving, with frequent and inexplicable drops.

I been having bone marrow biopsies about once a month and I am plagued with GvHD of the gut, skin and eyes, but it is worth the price. The doc is thinking about a top up of stem cells to boost my platelet count.

Thanks for listening to my story. I hope it can be of some help to those on a similar journey. Never give up and keep your focus on the future.
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David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.
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