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Catherine,
I have been in watch and wait for over 2 years now, counts have been pretty stable. When I was first diagnosed, we did blood checks weekly for the first couple of months, then monthly thereafter. I am currently on the at least every 3 months routine, which ends up being about every 6 weeks as I don't want too much to happen without knowing.
As for the BMB, I am currently doing 2 times per year, with the possibility of more if peripheral counts change dramatically.
I hope that helps.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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