Tom, I've been diagnosed as MDS Low Risk and steadily watch my numbers, all three, ever so slowly creep downward, but am still on the watch and wait list. It's been over four years now. I only have VA and Medicare insurance so I am certain it's a numbers game and they will not start anything 'til they absolutely have to 'cause it gets real expensive, real quick. I sometimes wonder if I would be into treatment now if I had some real high price insurance coverage.
