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Old Tue Mar 29, 2016, 11:37 AM
kyis kyis is offline
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Join Date: Jun 2013
Location: Marin, California
Posts: 56
Thanks All,
Never ceases to amaze me how different everyone is!
Day 14 is with day 1 being 1st treatment. I only had a 5 day regiment. Besides being fatigued, heart pounding, blood rushing in my little brain, my hip flexer muscles start hurting when my hbg gets low? Anyone ever notice the hip flexer deal? If I don't do anything I feel fine.

I was able to get cbc yesterday. My counts were pretty much back to where they were prior to vidaza, which I think is pretty good, especially my platelets and wbc stable, though anc was pretty low at 8% neutrophils. Probably getting a few units of super leaded this Friday, everything else under the hood should be good.

Below are some cbc's for us blood count fanatics. Sorry for the formatting.

HCT, Hgb, MCV, Platlets, Rb, rdw, wbc
11/9/15 MAN DIFF 26.7 8.9 120 54 2.22 14.5 0.5
12/16/15 MAN DIFF 28.3 9.6 119 61 2.37 14.5 0.8
1/19/16 MAN DIFF 26.5 8.9 119 40 2.23 14.7 0.4
2/9/16 MAN DIFF 25.9 8.9 118 55 2.20 14.7 0.8
2/22/16 MAN DIFF 22.7 7.7 119 52 1.91 15.1 0.5
2/26/16 MAN DIFF 21.1 7.1 121 46 1.75 15.2 0.7
3/4/16 MAN DIFF 21.3 7.1 121 48 1.76 15.0 0.8
3/9/16 MAN DIFF 20.5 6.9 120 56 1.71 15.0 0.5
3/13/16 MAN DIFF 29.3 10.1 107 45 2.74 25.0 0.6 After 2 unit transfusion (day before 1 shot)
3/28/16 MAN DIFF 22.4 7.5 108 45 2.08 21.9 0.5 Day 14
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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