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David,
I am so sorry for your loss. May your brother rest in peace. You and your family have my prayers.
I remember after transplant, when GVHD flared, and the doctor trying to prescribe or taper the meds for my GVHD, it was really hard for me. And every patient is different, so I think the doctors are still learning every time they meet a new patient, especially after transplant.
I'm sorry to hear your brother had hallucinations and couldn't wake up much. I know he is in a better place now.
Take care of yourself,
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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