[imckinne]

Thanks for the responses...I was previously aware of the hemachromotosis issue because my husband has been diagnosed and is phlebotomized. I beleive they have run the genetic test but I can't seem to get the results amidst all the crises we've dealt with over the past 6 weeks. Her Ferritin was already up to 780 the first time it was checked...after only 3 red transfusions so i was already concerned. Honestly, I've lost track of the number of transfusions but it must be somewhere around 20 units by now. I'm understanding that her numbers have gone up more quickly than might have been expected. Unfortunately, we're not terribly hopefuly that she will go into remission from the ATG treatment - since she can't tolerate the cyclosporin at all. Right now our main priority is helping her to recover from the brain bleed and other side effects from the ATG.