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Old Sat Jun 4, 2011, 10:41 AM
KimO KimO is offline
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Join Date: May 2008
Location: Chattaroy, WA
Posts: 48
While it is not unheard of to relapse on cyclosporine, let me encourage you that a drop -- even a big one -- is not necessarily a relapse. When Shauna went back to school she was still on weekly blood draws and her first counts after she got back were a huge drop. Platelets went from 174 to 124, Hgb from 12.6 to 10.7. It took about a month but they eventually recovered. I wish I could say that I took it calmly in stride but I would be lying.

Hang in there and let us know how you are doing!
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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