Hi Birgitta,
Would you be able to advise on the median time for response to EPO? My mothers doc discontinued after 8 weeks, saying no benefit. Her initial EPO level was 126, and she received 40,000 weekly for 8 weeks. As her treatment options are very limited, I am going to talk to the doctor once again about restarting, maybe at a higher dose. He also says there is no point adding GcSf as her white cell counts are fine whereas i have read that adding Gcsf improves the response. I am always confused. 
Thanks.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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