Thread: EPO worries
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Old Tue Sep 24, 2013, 04:51 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Side effects - Neupogen & others

Hi Birgitta-A, you are very courageous to try so many different drugs, and its great that they work for you. When Thalidomide worked for you, did you have to continue to take it for the years it worked? And now will you continue with Revlimid, if its helping your Hb? My question is that is the drug ongoing or can it be discontinued once the Hb levels go up? Do you expereince discomfort/side effects etc? Even on Neupogen?
My mother had no visible side effects with EPO, but Lenalidomide gave her nausea, acidity & leg cramps.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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