Hi JEZ
Aloha,
I also take Neoral. My doc and I think it is the best of the 3 choices for me. Sandimmune seemed too weak, and Gengraf's value was unclear.
The CsA alone this second time around seems to be working, and Dr Paquette wants to keep me on this dose until I have normal counts, absent complications. So far, so good: my whites and ANC are normal or very close to it, my hgb is 11.3, and my platelets are at 40k. I haven't needed PRBC since last July, and my ferritin is now at a safe level, and still declining. I feel very grateful.
I was on a big dosage of Prednisone before I was even treated with ATG. The doctor was hoping that it alone would do some good. It might have, but my marrow was too hypocellular to wait.
This board and AAMDS are fantastic help!!
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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