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Old Fri Dec 31, 2010, 12:48 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Exjade info needed

Hi All--Happy New Year!
I tried to search the archives, but didn't see some of my questions there....

I will be starting Exjade soon, as Ferratin levels are over 1000. A few questions that I didn't see in the archives:

-I will be starting round 5 of Vidaza on Monday...my Dr prescribe Exjade weeks ago, but it just came yesterday. Any contraindications of starting Exjade while getting Vidaza shots?

-Is ferratin level increased through foods or is it just transfusions that creates overload? Should I be concerned about eating foods with iron, like eggs, leafy greens, and shellfish?

-Side effects? I know diarehha (sp) is one; frequent? Life altering?
Any other changes (urine color, etc) should I expect? Any kidney symptoms I should look for?

I read that once levels are back around 500, to discontinue Exjade. (under Dr's orders, of course) Any idea how long that will take? I have a 30 day supply, and I wonder if it is weeks or months.

Thanks, and hope 2011 brings better health to us all!
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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