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Old Tue Nov 26, 2013, 01:01 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
1aplasticdiva,

I'm sorry that you have nothing but less-than-wonderful options. You never know when an NIH evaluation might get you into a trial, and that option could turn out to the best choice for you. So I suggest that you do whatever is necessary to get your medical records from Wisconsin and Texas. You might have to pay a copying fee to get copies of your medical records, they you have a right to them. You don't have to contact the doctors themselves. The hospital or other institution probably has a medical records department you can talk to.

When you have no full match for a transplant, one of the choices is a haploidentical transplant (a half match from a parent), but graft success is statistically better with a better match, and less likely to to lead to relapse. Another choice is umbilical cord blood (one or two units), which don't need to be an exact match and can produce less risk of graft-versus-host diseases, but usually with a longer recovery time.
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